Agenda

Busy times ahead –

Day one – CT scan, consultation

Day three – bone marrow biopsy with possible overnighter in prep for…

Day four – Hickman line in then impatient chemo x3/4 days

Anyone want to swap?!

1st Dec

Currently live blogging from El Hopital! On almost full stretch charger – be afraid for my data! Yet another ward with no WIFI – first world cancer problems. Unexpected overnight stay to have some red stuff pushed in me.

Needed to ring the Acute Oncology Service (AOS) last night as my PICC line wasn’t flushing. This can mean there’s a clot or blockage in the tiny line leading from my arm to my chest and thus v. Important to make sure it’s clear. They suggested pushing a tiny bit of saline down to see. We tried but no budge. Then rang back in the morning and they suggested trying again before resorting to more drastic measures (eg having line out or some enzyme in to clear the block – magic!) Line was super fine this morning – flushed like it should do! Next issue though was that during the convo with my special nurse, we’d mentioned that I’d had heart palpitations on Friday – this may mean that the line had moved and was tickling my heart… Imaging Mr Tickle’s arm as my line. Nurse said would talk to AOS and probs arrange a chest X-ray. I put some bread on to mix and took the pup out for a short loop walk around the field. Got the call from AOS whilst on way back – wanted me in for ECG and when could I come in? Earliest was gunna be 4pm as Mum at work.
Got to hosp at around 10 past 4, chest X-ray, bloods and ECG done by 6 and results were that haemoglobin levels were .6 and going to stay in to have some blood bags. Nightmare! So here I am – surrounded by older ladies and no laptop this time! Luckily had put the “hospital” bag in the car. Had dirty dirty Burger King for supper (judge me) which was great as was super hungry!

11th November

So this time it really is déjà vu because the I had to get rid of the puppy who kept wetnosing me meaning that I could not use the keyboard! But so I am back to where I was which was that it felt like déjà to was sitting in the living room watching Game of Thrones with the puppy on my lap. And I have also dug out my headset so I can do dictation instead to avoid using the keyboard as my wrists have been really painful and let’s hope it will also prevent puppy wet nosing – shall see how this goes!

Okay so back to the quick summary -so one ICE chemotherapthy down and the next is due to start next Wednesday. Well – that is when the bed is booked whether it will be the same as last time and we will be waiting for bed for two or three days, who knows!

A couple of days before I was due to start chemotherapy I went up to Oxford and had my right ovary removed for quiet preservation. This is obviously a dictation mistake which is hilarious! Cryopresevation. I’ll definitely be doing a separate entry about FERTILITY.

I was officially re-diagnosed with relapsed HL back in October after I had noticed a small lump in my neck as far back as May – which they were keeping an eye on – and had prompted several scans, one which I had one in June and another pet scan after my holiday in July, which led to having a needle biopsy and a chest biopsy…phew! More on those to follow!

Déjà vu 9th November 2015

So here I am, typing whilst one eye is on Game of Thrones and the doggy is trying to do a wet nose nudge! Bloody déjà vu or what – just like last summer.
Quick summary, will be adding more details later! I have had one round of ICE chemotherapthy from Friday to Monday. 1 bag of 1 hour joy and 2-3 12 hr bags including some called Mezna to reduce liver and kidney lining irritation. I was assessed as ok to leave at 9.30 am on the Tuesday and got home after 7pm due to waiting for my discharge drugs. A whole day. Extra.