Pompey whats!?

Monday 10th March

Can’t really remember – read, watched some BBad and had shower. Waiting to go for PET scan – “Ray” turned up late (10.15/30). Had been was expecting an ambulance and chair but it was just him – volunteer driver in a Honda jazz! Took ages to walk down the corridor, in my pj trousers lolz (had been told to have/wear outdoor clothes to the scan so asked if I was ok in my PJs…he said that was ok, probs thought it was a strange q!) We just swapped numbers as he said would take a couple of hours and that I could ring when I was done. Listened to woman’s hour in the car on way! Got there, he didn’t know where to go so went asked in recept whilst me in car. Then walked to scanning n Xray which was wrong place and had to walk around to nuclear medicine. At their reception we weren’t on the list…? Then rang though, I sat down and Ray left. Went though, sat in bay with massive chair. With CCTV camera in front too.

Asked lots of questions – when last had a CT, been exposed to asbestos, any surgery, had TB, when was last period…. Errr all days rolling into one! No ideas about dates and things – I’m in hopsitalll…? Really old lady turned up in bay next door, she seemed confused a bit and was French – referring to her “cahier” 😀 she was having issues with bloods or the cannula – bruised.

Had cannula in, bloods taken (he was ok at that but managed to get the tape stuck to his glove and not me! Left the ends of the tape folded which was annoying!) and blood sugar test. Sat there reading for a bit – stupidly left my headphones – couldn’t read properly and block out Heart radio. ear pain! ARRGH. Was loud. Then he came back and put a metal canister with normal plunger on the end (which had the nuclear injection) in. Didn’t feel anything going in, as soon as was in, cannula was out. Had to sit there for another hour or so I think and drink water as it went around the system. Another guy had come to give me the water. I don’t know if I was out of it or what, or they were talking quietly but I did keep finding it hard to understand them. Was told to keep warm so was wearing long sleeve top, hoody, scarf and my coat. Apparently so that less body turns up on the scan. Said that would go though scan 3 times or something, 2 shorter and one longer one taking 30 mins. Had to keep arms above head for the whole time, arm went dead, was really hard to keep still!! M said looked really swollen when then came over later when I had got back. Worst bit was having to listen to radio 2 OMG. Soo boring. Was interesting that they had an interview with Ray Mears BUT at the same time he chose the jungle book song – OMG really. Felt like an orang-utan with my arms above my head.. Some quiet spa music would have been better.. no water drips though :/ . It was quite loud too, don’t know how it would have been for the older lady. Think scan took longer as there was someone infront of me. Got worried half way though when I remembered that my phone was on in my bag haha! Oh well…

Old lady worried about necklace, had been to toilet and then got told she needed to take her bra off. Could hear she was getting a bit worried. Funny sign in toilet – sink not suitable for radio active waste. Got given letter to give nurses about patient contact and not ideal for pregger ladies to come near.

Sat waiting after. Nurse said that she would ring my driver as they don’t leave us alone and there was nooo signal. She came back and said he was going to to 13 mins haha was longer! Lady in next bed had had tumours removed and wanted to know if she should keep the cannula in for a test she was having tomorrow but they said wouldn’t need to.

Read their leaflet which would have been helpful to have had beforehand as it said why to bring outside stuff n clothes!

Lucky Ray came and took me back, was slow walk but quicker route to the outside. Stupid double lot of rotating doors – I started to head for the normal open one but just followed Ray. Nice weather still but hazy. Saw really fat lady in strapless dress :/ sad, very fat wobble. Boy/20yr old electric micro scooter no helmet, on road almost went in ront of the car. Listen to classic on way back, had to detour as bit of traffic and went around and saw the ordinace survey building.

Got back about 3, had MASSIVE PICNIC. Shoved soo much food in. they had given me a sandwich to take so I could eat after but crumbs and hospital :/. Mum n Sis1 showed, Sis1 made princess cake! Was very white and had raspberry jam and pink icing. She’d used the kitchen aid :D. Jess and nurses liked it. Watched lots of rubbish TV – the colours on neighbours looked weird! Sis1 and mum made tea, dad showed, Sis1 read Elle from the common room as did dad J funny pictures.

Missed calls Drs and surgery RANG say WHAT!!!!!!! Dr Better –“ missed your telephone appoint” WTF. Pharmacy “ringing to see about your inhaler” WTF!!!!!! Pharm had rang again later with their number so I rang them back and was like ERR not using it, I’ve moved. Mum said she would talk to better (doucheEEE). Nurse jess said unlikely that anything happen today – but that research nurse would be up after clinic. Vicky (pregnancy test nurse!) came and said that Dav would be around tomorrow but nothing this eve as everyone needs to check compare the PET.

Watched and caught up on Silk. Morph before bed, winner.

Radioactiv

Radioactiv

People watching

Sunday 9th March

Slept through til 6.30, had crazy dreams about some Disney land thing? Not sure, very strange. Was able to read book, watched JC catchup, watched bit of Clarissa, knitting, Meet me in St Louis. Nurse said that my blood pressure is low (this is not news!). Went got cup of tea from the kitchen in the common room. Asked about retainer. Back is a bit sore. Not sure if going to go home, D on way. messaged loz, j and kat – J in London, loz DIY-ing her new house! No rep from Kat. Iceman crufts-ing! D came over for the afternoon, sat outside in sun for ages, nice. There were some annoying kids – well the kids weren’t annoying but the two guys looking after them were! Not sure if relatives or they were together or minders or what! But they wouldn’t leave the kids alone. Helicopters going up and down. Got costa tea and amazing pecan slice thing, D watched rugby – England got the 3 match crown. Watched midwives. Told Vix who had just got back from skiing.

First time OUTSIDE in a week

Saturday 8th March

Plan is to leave for a bit? Dunno, was bit confzed cos they thought I wasn’t staying last night? Anyway woke up hot, think air went off or something, give me Florence’s sashes! Really annoying – just have to get out to get things – noting in easy reach, no little reading spotlights – so much for fancy room :D. Contacted Carol but luckily Get had told her.

Went home for a few hours, funny times with the wheelchair. stopped at top notch butchers on way back! Very strange to see what people were doing in town – lots of strange clothes going on as too hot too cold. Sorted out accommodation form. Manda corgie had sent some funny presents! Including a giraffe, Sis1 gave me amazing Donna Wilson scarf, nice cards. M took Sis1 around to see Han as she is going to Aus. Date popped around with some flowers and nice card. Lush to sit in sun – couldn’t believe had been soo long before going outside. Date’s mum had has hip operation and they are going on skiing. M drove me back, crazy workers in the hospital! Watched abit of The Voice (rubbish) then watched hostages and mad fat diary. Was very tired.

Chaplain off

Friday 7th March

Hot sticky eugh. Waited til around 7 to start reading some book. Put on some BreakingBad, watched Wreck it Ralph. Dr D came in and Mai and said about booking scan for Monday, they would get that sorted and have the neck CT scan today. They would be happy for me to go on day release for the weekend, would aim to have first lot treatment after scan on Monday.

Blummin religious lady came in too – she didn’t quite use the words spiritual counselling but almost did… should you need anyone to talk to, chaplaincy service etc.

Other trial nurse Vicky came in took bloods for trial. M said trying to sort Bristol, accommo contact didn’t sound like he knew what was going on haha.

Dr liam/adam came in to say CT about 3, kept dropping off before people came in! Watched a bit of Wonderlust, nurse looitta (?) coming in back and forth to ask qs about the scans – funny pregnancy q. “what’s your pregnancy status…?” (was around 2.30!) Aussie girl called April radiographer had to have canula put back in for the iodine etc. for CT. Had massive shower after? Had blood sugar test, A guy called Tim came in to make arrangements for the travel on Monday.

Iceman may come visit later, abee may see tomorrow! Told Get who was funny as usual! Monday will be nil by mouth for 6 hrs before the scan at around 11.30, need transport/outside clothes for it.

Got moved to the TCT ward up on D6(?) not sure. Maasive room looks like a boat cabin! Free tv wifi, xboX common room, massive bathroom, spare bed, imitation fishtank fireplace!

Iceman came for a bit, really nice to see him, had bought a Warhammer figure (Bless!) which he said was a cancer fighter and blasts it whenever he sees it. He is going to Crufts on Sunday with Trigger. He is planning to get a tattoo for his birthday and is thinking about proposing to the gf! Her family are still quite unwell with lots of various hospital visits, Paws is doing really well. Iceman is on a lower dose of meds but probs not helped by the drugs  :/.  He had bought snacks and D some salty nuts – needed really bad! D and Iceman went about 8.30, D gave him lift to station and went to pick up Sis2. Watched JC!! Wooo. Managed to get Wifi – B sent strange picture of CK – y??

TCT sunset

TCT sunset

Fishtank!

Fishtank!

Clocking in

Thursday 6th March

Keep waking up REALLY HOT. Very quiet (bad) like removed from the main desk – don’t get to see many people go past. It’s also really hot, so fan on all the time, window tiny and no little fishy picture. The sinks are really low down which is a pain for my back where I have had the marrow biopsy. Just seems more squished down here. View isn’t great, window TINY no air flooooowwww. It does have a TV but it’s actually really bright. Espech when it turned itself on… I rang for some painkillers at about half 6 but didn’t get any till about 7.30 – owtch – should have asked for el double strength! I have a clock at the end of my bed so will always know the time. Not sure that’s a good thing. Either today or tomorrow having a PET scan (which is funny because they just had one in BBad!) down in probs pmout. Then will start treatment and go home.  Cant get comfy though pillow wise. Finished watching World’s End? Watched The Heat.

Signed form for trial with trial nurse Sue and Doc Haley

Sis1 in bed, M went over to Date for coffee and Dates mum fell over 😦 . D bought some nice bisquits from fortums! Had some olives and blueberries. Stupid messages from B.

Watched some crufts, txt the sisters! Good Wife and Nashville

In the basement

Wednesday 5th March

Think they had someone new admitted last night and it was loud. Kept waking because of the dressing from the biopsy – very sore, accidentally slept on it! Dawn chorus was SOOO LOUD too – had to shut el window. Might need to have a shower today! Hahaha eww. Have been told might be swapping with someone on the oncology ward who is on the thoracic surgery list. No idea about Pomp. Had nice big long shower but because the water was soft, really hard to get soap off!!

Watched BBad then M came in around 4. Little Liam and possibly nurse Clare said that they had a bed in c4 and that we would be doing a swap. Little Liam also said that someone might be around a bit later. He listened to my tum but no probs so that’s ok.

R and B sent stupid messages about the food. I told Ness.

M around 4pm, bought presents which had been left on the front door from Kat, Gem, Loz, J, Baz and Bec which was very wonderful of them!

SHO Haley and Dr D came in when M was here and we had just finished reading the letter about the trial. New info was that on the trial last year that 100% of patents showed signs on their PET scans that the cells had stopped taking up the gluscose?? Don’t know. Was a 26 person sample and was for the new drug on the first hit not on second hit (i.e. had tried conventional method first, then the new med)

ANYWAY

Started to pack up to move but porters came really quickly so they said they could come back in 10/15 mins – was more like 40! Got pretty hot. M disconnected the bed and we were ready to go. Dr Amar poked his head in and said good luck etc. GP had already rung Mum earlier in the day.

D messaged to say on his way but stuck in traffic. He turned up bout 5 mins after getting onto the ward. It feels like its in the basement. Had missed food – Think it was on the trolley on the way out of D ward! but had sweet n sour chicken with rice and a choc sponge w custard which was super tasty. Probs because I was so hungers. Email from Marc about rep stuff! Put him straight on some of that :D. Saw had email from fbk about an invite to R birthday thing. HUH that’s not gunna happen….14th March though, need to remember in terms of moving out shiz. Watched Line of Dhuuuuutayy and Restaurant man and some of Worlds End (Monsieur Pegg).

basement 1

Basement room view

basement

basement!